Giving Tuesday 2023

by | Nov 28, 2023 | Rare Reflections

This GivingTuesday, Noah’s Hope-Hope 4 Bridget is raising money to support Batten disease research. Our goal is to raise $10,000 —will you help? Donate Now Greetings! As we head into the holiday season, we hope you are enjoying time with family and friends. It...

2022 NH-H4B Annual Update

by | Nov 11, 2022 | Rare Reflections

Greetings! We hope you and your family are well! We wanted to share a few updates with you about our mission for CLN2 Batten disease. With generous donations from you, our sponsors, and supporters, we have been able to fund over $2 million to scientists and research...