This GivingTuesday, Noah’s Hope-Hope 4 Bridget is raising money to support Batten disease research. Our goal is to raise $10,000 —will you help?
Greetings!
As we head into the holiday season, we hope you are enjoying time with family and friends. It is a time to appreciate our fortune and hope for better times for those who are having challenging ones.
Please consider supporting Batten disease research through Noah’s Hope-Hope 4 Bridget by donating to our GivingTuesday campaign. You’ll be doing more than just donating—your kindness will make it possible as we we continue our fight against CLN2 Batten disease for children like ours: Noah, Laine and Bridget.
CLN2 Batten disease is a rare, fatal, inherited disorder of the nervous system that typically begins in early childhood. Unfortunately, there is currently no cure for Batten disease.
The Noah’s Hope-Hope4Bridget foundation is dedicated to raising awareness and funds for research of CLN2 Batten disease. We believe that every child deserves a chance at exploring life while living with Batten disease.
While we are grateful for the enzyme replacement therapy (ERT) treatment, we continue to searching for additional treatments and a CURE for CLN2 Batten disease.
Current Projects funded by NH-H4B
- GOLD Sponsor: 18TH Int’l Congress of Neuronal Ceroid Lipofuscinoses
- Rush Chicago – Pediatric Neurology Translational Neuroscience
Sanford at the Weimer Lab
- “Explore GPI and metabolome as biomarkers of CLN2R208X disease course”
- “Determine short term efficacy of CLN2 base editors in CLN2R208X pigs”
Washington University at the Cooper Lab
- “Combined Treatment of Central and Somatic CLN2 Disease in Mice”
With your generous support, we can help make a difference in the lives of these brave children and their families.
Peace & hope to your family this holiday season!
With gratitude,
Sara & Dave Kennicott
Jen & Tracy VanHoutan
Everyone can have an impact on #GivingTuesday!
Donate online or checks may be mailed to:
NH-H4B
P.O. Box 54
Downers Grove, IL 60515
Visit Noah’s Hope Online | Visit Hope 4 Bridget Online
Noah’s Hope – Hope 4 Bridget is a 501(c)(3) registered charity supporting Batten disease research and recognized by the IRS.
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